January 4, 2013
After toying with the idea of having cochlear implants (CI),
I am now taking the steps to make this a reality. Some of the fears about just
having it done are tabled, and I am just taking it one day at a time…my
self-preservation tactic to avoid any kind of sucker punch that may halt the
process.
I have been wearing hearing aids for 30 years (actually this
very year because I was fitted with my first pair while holding infant Stephanie
in my lap) I was able to keep the cost of getting 2 hearing aids every 7 years
or so with Voc Rehab, Flex Benefits, appealing to school principal to follow
ADA requirements. The cost was usually an up-front one-time payment ranging
from $1000 to $5000. After moving to Colorado and not working full time that
became a future burden I didn’t want to face.
I met a new audiologist and ENT at the University of
Colorado Hospital. I took the first test in 2008 and then again in 2011. I
“hear” too well to qualify using my brain to fill in the pockets I don’t
hear. On Dec 31st 2012, I had
failed enough to qualify, going from a speech discrimination of 67% to 28%
bilaterally. My hearing loss hasn’t changed but the word clarity is in the
bucket (aging process sucks)
So now the process of acceptance is in motion. A
balance/gravity test VNG (Videonystagmography) and VEMP (Vestibular Evoked
Myogenic Potential) was administered last Wednesday, January 2, 2013. This
involved trying to get me dizzy by flushing warm and cold water into my ear
canals and then measuring my eye movements while wearing a mask and then
testing the balance organ by marking neck muscle, sternum, and ear canal
electrodes. Evidently I passed that with the knowledge that my left ear is more
balanced than my right by a slight margin. Still no indication that both ears
could not be implanted simultaneously.
So now I wait 2 weeks until January 14th to meet
with the surgeon and audiologist to decide on the right product for my
lifestyle, get the info about the surgery and schedule a CT scan to check the
bones. I have a library of promo material from the 2 companies and my single
solo alone mind to figure out which to pick. THEN the coup de grace approval
from BCBS, All of this hassle, testing, money, and false hope have to happen
before I can even find out if I can have the surgery. Actually the possibility
of not being approved is pretty slim, but how much out of pocket is the big
roadblock and my biggest fear. I am preparing myself to hear that this will
cost me my deductible ($3000). If I have to pay a 20% over that which would be
close to $20,000), I have to call off the deal.
I’m not too thrilled with the $3000, but it’s kind of doable especially
if I can work out a payment plan over 6 months. That is my hope. Then my little
“Pollyanna Buster” voice says, “Don’t get your hopes up, sister!”
Another worry, trepidation, concern is how alone I feel in
doing this. Wayne doesn’t like to talk about it. I just get, “You’ll research
it and I will support you.” Steph and
Sam aren’t around and they have their own problems. Friends are too far away,
Yeah, I would talk adnauseum about it if I had the chance, but it’s how I deal
with the fear and try to make choices. Actually, I know I can make the choice, it is a
personal one anyway, but I also think about the day of the surgery and
following. Historically Wayne is always
“busy” when I need/want him. I feel I
have to schedule around him all the time.
I just got the call that my CT scan is now scheduled for next
Thursday January 10th at 8:45. So all will be in place for my pre-op appointment
the following Monday. If I put aside all
my doubts, this could actually happen by Valentine’s Day. I have a PEO program that I am supposed to
give that day so, I am kind of hoping that it would work for the 15th.
Of course if they could get it in sooner, I would go for it.
So now I just wait… going to purge my sewing room, now.
What a strong and lovely person you are. You will be in my prayers. Blogs make the world very small - friends we may never meet but who can be of such rare support. Take care. Again, so glad you're back.
ReplyDeleteThank you so much for the warm welcome back. I have missed the connections and support we bring each other through these ramblings.
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